Day 6: Caregiving from Afar

November 6, 2011

By Sean Coffey

A study earlier this year focused on the issues of caregiving from a distance for adult children whose parents were diagnosed with cancer. In an interview with one of the authors (scroll down to May 2011), Polly Mazane, PhD, ACNP, AOCN, she explained that there is a joke about adult [...]

Day 5: Wait Lists in Medicaid

November 5, 2011

By Sean Coffey, Policy Specialist, Family Caregiver Alliance

While researching services for a caregiver in Florida, I stumbled upon Arc Florida’s webpage, and a section entitled “Wanting to Move to Florida?” that cautions people:

If you live elsewhere and are receiving Medicaid Waiver services, your waiver services will NOT transfer to Florida.  You will still [...]

With CLASS Potentially Shelved, Is it back to the Status Quo?

The planning and development process for CLASS, the Community Living Assistance and Support Program, may be either shelved or put on “pause” according to several media reports. Forbes reports that the chief actuary behind the planning of CLASS, Bob Yee, emailed his co-workers to say he was leaving because the entire CLASS staff is [...]

Are Family Caregivers Worth Less?

Editor’s Note: According to the Star Tribune, (thank you PHI National for posting this) a county judge has ruled that the 20% cuts for family caregivers can be enacted.  “Lindman found that the Legislature offered the necessary “rational basis” for the pay cut when it decided that family members have “moral obligations … toward helping family members [...]

Costly Caregiving: A Case for Policy Solutions

Note: This blog posting was first posted on the California Work and Family Coalition Blog, Family Caregiver Alliance is a member of this coalition.

Family caregivers know that long-term care can be expensive, and recent research has confirmed this. Expenses may include prescriptions, co-pays, medical equipment like walkers, and home modifications. There are also [...]

Why We Need Community Living Assistance Services & Supports (CLASS)

Staff from our organization, Family Caregiver Alliance, speak with family caregivers every day through our national information and referral hotline. These caregivers are often facing enormous financial difficulties. For example, adult children who are caring for parents with Alzheimer’s, especially in its advanced stages, find that keeping a job and being a caregiver is nearly [...]

VA on the Road to System Transformation

On May 9, the VA will open the application process for eligible post-9/11 Veterans and Service Members to designate their Family Caregivers who will be eligible to receive a host of benefits.  Benefits for the family caregiver may include a stipend, mental health services, access to health care insurance (if not already covered under a [...]

Best of Awards for 2010

How good was 2010 to family caregivers? Well if you factored out the protracted budget crisis in the states, it was a pretty good year. Two landmark pieces of legislation set the pace: the Patient Protection and Affordable Care Act (PPACA) and the Caregivers and Veterans Omnibus Health Services Act.  We have also gathered other [...]

State Policy Recommendations for Caregivers

I had the pleasure of addressing the California Commission on Aging last week during their public hearing on “Celebrating Caregiving in California”. I was asked to provide the historical background on caregiving in my home state and look at the future in terms of policy directions. I would like to share some of [...]

States, Counties and Cities: The Long Road to Recovery

As the negative economic news continues, what are we to make of the prolonged recession that has already changed the service landscape for caregiving families? Difficult debate and hard decisions are underway at every level of government from federal, state, county to city levels. The services that families depend on for support such [...]