Day 21: A Perspective on Caregiving from the Foundation Level

November 20, 2011

By Amy Berman, Senior Program Officer, The John A. Hartford Foundation

I remember the day that my grandmother came to live with us. Grandma Shirley had Alzheimers Disease. She was no longer able to live independently. Growing up I had always looked forward to trips to New York. She had [...]

Day 20: Who’s the Boss? Providing Person-centered Care and Caring

November 20, 2011

By Bonnie Kantor-Burman, Director, Ohio Department of Aging

My mother was cared for by a wonderful woman, Darlene, during the time she needed long-term care and caring. One day, I asked Darlene if my mother could go somewhere with me—I don’t remember where, but it really doesn’t matter. What matters is the quizzical and [...]

Day 17: Assessing the Needs of Family Caregivers: An Outlook from Capitol Hill

November 17, 2011

By Senate Special Committee on Aging, Majority Staff

Despite their large numbers, family caregivers remain at the margins of our health and aging services system. It is time to give a voice to the 44 million people who provide long-term care to frail elders and disabled Americans. As the Baby Boom Generation moves into [...]

Day 12: Caregiving in the LGBT Community

November 12, 2011

By Scott French, SAGECAP Program Manager (Services and Advocacy for Gay, Lesbian, Bisexual & Transgender Elders) CAP (Caring and Preparing)

Caregiving takes many forms. While we might think of caregivers as paid aides, in reality, the majority of caregiving in the U.S. is provided by informal caregivers, usually a spouse or child. In the [...]

Day 10: The Immense Value of the Family Caregiver Support Group

November 10, 2011

By Lois Esobar, MSW, Family Consultant at Family Caregiver Alliance

The role of a family caregiver is difficult. Aside from taking care of their loved one, they must also continue to lead their lives, which includes, working, caring for family, grocery shopping and the list goes on! Many family caregivers need time to [...]

Day 8: Holiday Time, Siblings and Parent Care

November 8, 2011

By Leah Eskenazi, MSW, Director of Operations and Planning at Family Caregiver Alliance

Are you looking forward to getting together with your parents and siblings for Thanksgiving? Maybe not. Sibling relationships and parent–child communication can be complicated. Should one or both of your parents also suffer from a progressive chronic illness, then the [...]

Day 2: Is there anything good about caregiving?

November 2, 2011

By Sean Coffey, Policy Specialist, Family Caregiver Alliance

As advocates and people that work with family caregivers and their loved ones, we are often focused on the negative aspects of caregiving.  There are logical reasons for this, for example, the family caregivers we work with often contact us when they reach a breaking point, [...]

30 Days of Caregiving

November 1, 2011

By Kathy Kelly, Executive Director, Family Caregiver Alliance

In honor of National Family Caregiver Month in November, we decided to feature a different perspective each day for the entire month this year. 30 days, 30 stories. Some of the topics are practical with a focus on care, some are about policy and [...]

Are Family Caregivers Worth Less?

Editor’s Note: According to the Star Tribune, (thank you PHI National for posting this) a county judge has ruled that the 20% cuts for family caregivers can be enacted.  “Lindman found that the Legislature offered the necessary “rational basis” for the pay cut when it decided that family members have “moral obligations … toward helping family members [...]

Eliminating Adult Day Health Care in California

Editor’s note: This letter was submitted to Senator Mark Leno today by Family Caregiver Alliance. He is the Chair of the Senate Budget & Fiscal Review Committee.

Family Caregiver Alliance (FCA) is writing to express our concerns about the planned dismantling of the Adult Day Health Care (ADHC) system.

As you noted at a recent Senate [...]