Day 21: A Perspective on Caregiving from the Foundation Level

November 20, 2011

By Amy Berman, Senior Program Officer, The John A. Hartford Foundation

I remember the day that my grandmother came to live with us. Grandma Shirley had Alzheimers Disease. She was no longer able to live independently. Growing up I had always looked forward to trips to New York. She had [...]

Day 20: Who’s the Boss? Providing Person-centered Care and Caring

November 20, 2011

By Bonnie Kantor-Burman, Director, Ohio Department of Aging

My mother was cared for by a wonderful woman, Darlene, during the time she needed long-term care and caring. One day, I asked Darlene if my mother could go somewhere with me—I don’t remember where, but it really doesn’t matter. What matters is the quizzical and [...]

Day 19: The Imperative for Caregivers to Speak Out and Help Shape Policy

November 19, 2011

By Debra Ness, Leader, Campaign for Better Care and President, National Partnership for Women & Families

Too often, being a family caregiver is like running an obstacle course: carrying medical records from doctor to doctor, carving out time to attend medical appointments and trying to be sure that you fully understand your loved [...]

Day 18: Preventing Abuse and Neglect

November 18, 2011

By Elaine Chen, MSG, National Center on Elder Abuse

“I never expected to find myself in this position,” the woman told me with frustration overlying the sadness in her voice. Her mother, Mrs. P, had moved into an independent living community, and recently began displaying increasingly worrisome behaviors. The property managers called [...]

Day 17: Assessing the Needs of Family Caregivers: An Outlook from Capitol Hill

November 17, 2011

By Senate Special Committee on Aging, Majority Staff

Despite their large numbers, family caregivers remain at the margins of our health and aging services system. It is time to give a voice to the 44 million people who provide long-term care to frail elders and disabled Americans. As the Baby Boom Generation moves into [...]

Day 16: Next Step in Care: A Web-based Caregiver Manual for Navigating Transitions

November 16, 2011

By Carol Levine, Director of the Families and Health Care Project at the United Hospital Fund.

In a focus group, Maria, a young woman caring for her father, complained, “When you buy a pet, you get an instruction book that tells you how to feed it, water it, and clean it – everything [...]

Day 15: “Family Caregivers Go on Strike, Stealing Attention Away From NBA Strike”

What if Family Caregivers Went on Strike?

November 15, 2011

By Sean Coffey, Policy Specialist at Family Caregiver Alliance

During the past 15 years, researchers have analyzed a number of topics around the impact of being a family caregiver.  There are plenty of data about the effect of caregiving on the caregiver’s health, including increased risks of depression, [...]

Day 14: Participant Direction is Growing

November 14, 2011

By Elizabeth Maguire, MSW, Assistant Director, Marketing & Communications, National Resource Center for Participant-Directed Services

Have you heard about the emerging model of home and community-based services for older adults and people with disabilities? This model is called participant direction (sometimes referred to as consumer direction or self direction) and it gives people enrolled [...]

Day 13: The Best Decision I made as a Caregiver

November 13, 2011

By Lucy Lazarony

My mother Jean has been attending an adult day center run by Alzheimer’s Community Care in Boca Raton, Fla. since June 2006.

My mother was diagnosed with Alzheimer’s disease in September 2005 and choosing to enroll her in a specialized adult day center is the best decision I have ever made as [...]

Day 12: Caregiving in the LGBT Community

November 12, 2011

By Scott French, SAGECAP Program Manager (Services and Advocacy for Gay, Lesbian, Bisexual & Transgender Elders) CAP (Caring and Preparing)

Caregiving takes many forms. While we might think of caregivers as paid aides, in reality, the majority of caregiving in the U.S. is provided by informal caregivers, usually a spouse or child. In the [...]