By Kathleen Kelly - FCA Executive Director, on November 21st, 2011
November 20, 2011
By Amy Berman, Senior Program Officer, The John A. Hartford Foundation
I remember the day that my grandmother came to live with us. Grandma Shirley had Alzheimers Disease. She was no longer able to live independently. Growing up I had always looked forward to trips to New York. She had [...]
By Kathleen Kelly - FCA Executive Director, on November 20th, 2011
November 20, 2011
By Bonnie Kantor-Burman, Director, Ohio Department of Aging
My mother was cared for by a wonderful woman, Darlene, during the time she needed long-term care and caring. One day, I asked Darlene if my mother could go somewhere with me—I don’t remember where, but it really doesn’t matter. What matters is the quizzical and [...]
By Kathleen Kelly - FCA Executive Director, on November 19th, 2011
November 19, 2011
By Debra Ness, Leader, Campaign for Better Care and President, National Partnership for Women & Families
Too often, being a family caregiver is like running an obstacle course: carrying medical records from doctor to doctor, carving out time to attend medical appointments and trying to be sure that you fully understand your loved [...]
By Kathleen Kelly - FCA Executive Director, on November 18th, 2011
November 18, 2011
By Elaine Chen, MSG, National Center on Elder Abuse
“I never expected to find myself in this position,” the woman told me with frustration overlying the sadness in her voice. Her mother, Mrs. P, had moved into an independent living community, and recently began displaying increasingly worrisome behaviors. The property managers called [...]
By Kathleen Kelly - FCA Executive Director, on November 17th, 2011
November 17, 2011
By Senate Special Committee on Aging, Majority Staff
Despite their large numbers, family caregivers remain at the margins of our health and aging services system. It is time to give a voice to the 44 million people who provide long-term care to frail elders and disabled Americans. As the Baby Boom Generation moves into [...]
By Kathleen Kelly - FCA Executive Director, on November 16th, 2011
November 16, 2011
By Carol Levine, Director of the Families and Health Care Project at the United Hospital Fund.
In a focus group, Maria, a young woman caring for her father, complained, “When you buy a pet, you get an instruction book that tells you how to feed it, water it, and clean it – everything [...]
By Kathleen Kelly - FCA Executive Director, on November 15th, 2011
What if Family Caregivers Went on Strike?
November 15, 2011
By Sean Coffey, Policy Specialist at Family Caregiver Alliance
During the past 15 years, researchers have analyzed a number of topics around the impact of being a family caregiver. There are plenty of data about the effect of caregiving on the caregiver’s health, including increased risks of depression, [...]
By Kathleen Kelly - FCA Executive Director, on November 14th, 2011
November 14, 2011
By Elizabeth Maguire, MSW, Assistant Director, Marketing & Communications, National Resource Center for Participant-Directed Services
Have you heard about the emerging model of home and community-based services for older adults and people with disabilities? This model is called participant direction (sometimes referred to as consumer direction or self direction) and it gives people enrolled [...]
By Kathleen Kelly - FCA Executive Director, on November 13th, 2011
November 13, 2011
By Lucy Lazarony
My mother Jean has been attending an adult day center run by Alzheimer’s Community Care in Boca Raton, Fla. since June 2006.
My mother was diagnosed with Alzheimer’s disease in September 2005 and choosing to enroll her in a specialized adult day center is the best decision I have ever made as [...]
By Kathleen Kelly - FCA Executive Director, on November 12th, 2011
November 12, 2011
By Scott French, SAGECAP Program Manager (Services and Advocacy for Gay, Lesbian, Bisexual & Transgender Elders) CAP (Caring and Preparing)
Caregiving takes many forms. While we might think of caregivers as paid aides, in reality, the majority of caregiving in the U.S. is provided by informal caregivers, usually a spouse or child. In the [...]
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