30 Days of Caregiving: Illuminating the Backbone of Our Long-Term Care System

Family Caregiver Alliance is grateful for the guest bloggers who wrote for the 30 Days of Caregiving. We appreciate the time you took to share your knowledge, resources, perspectives, and personal experiences with family caregiving. We put all of the titles and organizations into wordle- a website that takes your text and makes it into [...]

Day 30: Family Caregivers Share Their Wisdom

Editor’s note: We couldn’t think of a better way to conclude 30 Days of Caregiving than hearing from family caregivers themselves.   We asked family caregivers from FCA’s online support group to write and share their insights, and they generously shared their experiences below.  We also took the liberty of putting their posts into wordle- a [...]

From daughter to friend

November 29, 2011

By Lucy Lazarony

I don’t remember when my mother forgot who I was. But I know she did.

Somewhere along the slowly sloping path of Alzheimer’s disease, she forgot I was her daughter. She forgot what “daughter” meant.

And so I became a friend. A friend that never stopped calling her “Mom.”

It wasn’t always easy to [...]

Day 29: Protecting Caregivers through Social Security

November 29, 2011

By John Jankowski, Research Analyst, Social Security Administration

Of the many effects that caregiving can have on the caregiver’s financial well-being, one of the most harmful—and often least discussed—is its effect on future retirement income. The typical caregiver spends a significant period of time outside of the workforce, which leads to a shorter work [...]

Day 28: Asking for Help

November 28, 2011

By Sarah Wells, Executive Director, National Consumer Voice for Quality Long-Term Care

It can be hard to ask for help. I know this first-hand. I’m one of those people who tend to always say “yes”, never “no,” and really want to do things myself. I find it incredibly hard to imagine that someday I [...]

Day 27: Caregivers: We Need to Work Together for Change

November 27, 2011

By Jenya Cassidy, Labor Project for Working Families

My 92-year-old grandmother recently fainted while walking to get her mail. She fell forward so hard she fractured bones in her face and arm. The fall and the low blood pressure that caused the fall disoriented her to the point where she forgot where [...]

Day 26: Angels in the Workplace

November 26, 2011

By Sharon Cooper, M.Ed., Media Consultant, Hospice of St John

I glanced up from my note taking to look at the woman I was interviewing for the Hospice of Saint John’s 2012 video, noticing how radiant her face had become. As she continued to relay patient care stories, she grew less aware of my [...]

Day 25: Respite: An Important Part of the Caregiving Journey

November 24, 2011

By Edrena Harrison, ACSW, Information Programs Specialist, Family Caregiver Alliance

Have you ever wondered why before each plane takes off, a flight attendant prepares adult passengers, in part, by instructing them to put oxygen masks on themselves first and then on children in their care? One reason, of course, is if an adult passes [...]

Day 23: Life After Caregiving – Ireland’s Experience

November 20, 2011

By Liam O’Sullivan, Executive Director, Care Alliance Ireland

While there has been significant progress made in the past 20 years in the provision of state supports for caregivers in Ireland, we know little about the experiences of caregivers after their caring has ceased or changed in nature.

A recent report from Ireland on the [...]

Day 22: The Aging Services Network: Ready to Assist Family Caregivers

November 22, 2011

By Greg Link, Aging Services Program Specialist, U.S. Administration on Aging

Are you concerned about the well being of a family member or loved one? Do you assist a friend or family member with tasks like bill paying, transportation, grocery shopping, house cleaning, or more complex hands-on care? Do you need help [...]